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Showing posts with label funding. Show all posts
Showing posts with label funding. Show all posts

Wednesday, September 30, 2015

On the Verge of History

There is news. GOOD news.

I am so excited about the coming days, it's beyond incredible how terribly thrilled I am.

The Ontario government is on the verge of an announcement. I can feel it. It's in the air.

The papers are awash with fertility stories and murmurings of "delays" in the upcoming announcement abound today. It's palpable. It truly is.

And on the fertility groups and forums I am part of, there is tension, excitement, eagerness, hope, prayer, and above all, cheer.

We are on the cusp of a momentous decision and I pray with every fibre of my being that the right decisions are made by those in power so that many of the people of this great province can move forward with their plans to build a family.

Stay tuned...

GREAT things are coming. And very, very soon...

Tuesday, April 29, 2014

From Futility to Fertility

As featured a couple of weeks ago in the pre-budget announcement, this is the article in the local newspaper that was widely shared by our social media consultants. I am pleased with the article and of course, with the prospective hope that so many couples might have the opportunity to have help to create their families.

It's too late for us... but it's not too late for others. And this is why I fight.

They should be able to have families too, and not have to take out a second mortgage, borrow until they have no more room to do so, or sell body parts to fund IVF.




The three pics are of me and Petite taken the same day as the announcement occurred. She knows a lot about her story already; I will give her all the details as she grows older and can understand. I will not hide it, for I am proud of her and so thrilled that I get to be her mom.

Yes, that still stuns me. *wipes a tear*

I'm lucky and grateful. And I remember that every. single. day. Without fail.

Good on you, Ontario, for doing the right thing. Now to have it come to fruition when the budget is officially delivered later this month or next. Keeping fingers crossed that the promises come true.

Thursday, March 03, 2011

27 Percent; now that's quite a drop!

On Tuesday evening, I had the pleasure to attend the brainstorming session organized by Kerri at Conceivable Dreams and held at the Ottawa Fertility Centre.

It was a wonderful evening spent in the company of some amazing people who shared their stories and who are all committed to bringing infertility to the attention of both politicians and everyday Canadians alike. There were some FANTASTIC ideas tossed around and I'm sure some members of that group will be involved with further development in the coming days/weeks/months.

That said, I learned one extremely interesting point on Tuesday night. I hadn't seen this statistic before but Dr. Leader (one of the REs on staff at OFC) brought it to my attention in his presentation to the group.

In three short months, there is evidence that Quebec's decision to adopt provincial funding for IVF treatments has decreased the rate of multiple pregnancies from the previous 30% of IVF treatments to just 3% of IVF treatments.

A 27% reduction in multiple pregnancies in only three months?! Amazing. Truly amazing. It boggles the mind. Right there is the reason why each province ought to fund treatments.

If only 3% of IVF treatments result in multiple pregnancies, that's a whole lot less women in the high-risk category. Thus they have less need for repeated ultrasounds. Less need for bloodwork. Less need for repeated visits to the OB. Less need for non-stress tests. Less need for amniocentesis procedures. Less need for (and I know it's never easy) selective reduction or other drastic medical procedures to ensure the health and safety of both mother and fetuses. Less need for long stays for infants in the NICU after birth. Less need for LOTS of expensive procedures. The cost is dramatically reduced right there.

If Ontario funded IVF, in only 10 years, the province would actually SAVE over $500 million. FIVE HUNDRED MILLION DOLLARS. It's mind-boggling. This really seems to be a no-brainer.

You end up with more children in the end, because more families would avail of the procedures, if they were funded. Thus you end up with more taxpayers. But you have less risk of multiple births (twins and triplets), and high-order multiples (4+ fetuses) would be almost non-existent. Hospital stays and costs would drastically reduce. In multiple pregnancies and births, often the babies suffer from long-term health issues. By minimizing the multiple pregnancies, we'd be reducing the costs of long-term care/treatment for each of these issues and we'd have more citizens to show for it.

Dr. Leader had that statistic for us the other night and my jaw dropped. No joke. With this evidence right in front of us, it only makes sense for Ontario to pay attention.

National Post Article: Quebec IVF strategy cuts rate of multiple pregnancies

Monday, February 28, 2011

Eighteen Months

I still have a very hard time believing that we've gotten this far.

How did we get from this...


(Petite dozing at a few days old)





... to this?


(Petite dozing on my shoulder last week, a few days shy of 18 months old)


My little girl is growing up. She's got a happy, enjoyable (but firey!) personality. She loves her Pooh Bear and The Wiggles. She adores cuddles and kisses with Mommy and roughhousing with Daddy. She is definitely a busy, growing girl.

And I am grateful. Every single day, I give thanks.

Tomorrow morning, March 1, Petite has her 18-month checkup. (Oh I hate it when she has to get shots.)

Tomorrow evening, we go to the Ottawa Fertility Centre to participate in the brainstorming session for raising awareness in the upcoming provincial election about IVF funding. I look forward to that. I have some ideas. Petite's big brother and sister will babysit; I hope it goes well!

Things are going well with Petite's big sister in our house half-time; the other half, she lives at her mom's house. She would like to live with us full-time though. I'm not sure if that'll be possible. We'd have to check on the regulations in Ontario and criteria for student loans. If we can make it work, we may give that a shot. It's a little early to know for sure, but we're looking into things.

My BIL celebrated his birthday last week! Happy Birthday Tony! He usually hits the slopes to celebrate his birthday; he did that this year too. Next year, he'll have a 9-month old in the house (crosses fingers that all goes well) so I dunno if my sis will let him out to celebrate all weekend with the boys! LOL

This coming weekend, on March 5, my father will celebrate his 70th birthday. He certainly doesn't seem like he's 70 to me though! More like... 55 but with more grey!! I wish I could be there to celebrate this milestone with him. But I won't be; I expect we'll have to Skype instead so he can see Petite. Let's face it, he doesn't need to see me! It's all about the baby!! And that's just fine in my book.

And my parents are moving. The house they have is far too large for them now that my sister and I have both moved elsewhere and set up house in other places. The house that they've had since I was 16 will be on the market soon. It's beautiful. If I lived back at home, I'd buy it! But I can't. So they must move on. I'm glad for them that they've found a new place they love. Hopefully they can make new memories there. I hope to see their new place later this summer.

Yesterday morning, Hubby, Petite and I skipped our regular church service to attend the baptism of Sandra and Edward's triplets: Colin, Keith and Evelyn. Oh but they're beautiful babies! Petite was curious about them of course. For a few minutes anyway, and then she wanted to go play! It was so lovely to meet Sandra and Edward in person. Years ago, I suggested that they try McGill rather than Ottawa for their infertility procedures, and voilà... triplets! Hubby joked with them yesterday that maybe we ought to apologize! Sandra laughed and said that they are so pleased with the way things turned out. She looked beautiful, Edward was calm and cool and all three babies were just doing their thing. It was a gorgeous service and a lovely morning. I'm so glad we could go.

Today is a snowy Monday in Canada's capital. School buses are cancelled (which means a 'snow day' for the kids) and I debated rolling over in bed, calling the office and staying home, to cuddle with my toddler. Time passes so quickly. I just want to make the most of every moment that we have.


Sitting in her rocker (my old rocker), ready for bed, taking time for
a cuddle with Pooh while she watches The Wiggles (one week shy of 18 months)

Tuesday, December 07, 2010

Funding IVF in Ontario; The Time is Now

It was with pleasure that I read Loribeth's post the other day. She discussed Canada's Governor General, Mr. David Johnston, in her post "Hey, the GG has a clue!" and referenced an article that recently appeared in the Star. In his first official visit to Queen's Park, our GG urged Ontario to act on adoption and infertility, "imploring MPPs to make it easier for women to get pregnant and for families to adopt children."

In 2008, Dalton McGuinty's Liberals asked Mr. Johnston to head up the Expert Panel on Infertility and Adoption. For those who may not know, I was one of the hundreds of people interviewed by the panel. I told my story, in detail. At the time, I was about 10 weeks pregnant after our only IVF cycle at McGill in Montreal. And yes, I told them that the reason I chose to go to Montreal and not the Ottawa Fertility Centre, was, at that time, mainly financial.

The panel's report is Raising Expectations, and among its recommendations are the following:

Adoption
  • Create a provincial adoption agency.
  • Develop tools to manage the adoption system.
  • Provide adequate funding that supports the realities of adoption.

Assisted Reproduction

  • All Ontarians should know how to protect their fertility. (discusses education, counselling, fertility testing and monitoring)
  • Assisted reproduction services should be safe and meet the highest, evidence-based standards. (discusses accreditation, multiple births, safety, timeliness)
  • Ontario cannot afford not to fund assisted reproduction (discusses what should be funded, including fertility medication and counselling)
  • Ontarians who could benefit should have access to assisted reproduction services. (discusses work life, geographic access, legal and social barriers, fertility preservation, and HIV discordant couples)

And it recommends that there is a need to raise awareness about family building options in Ontario.

(Read the executive summary. // Read the full report [index]).

As the head of that Expert Panel, it is David Johnston's signature on the documentation submitted to the Ontario Health Minister, Deb Matthews, for further review... and hopefully, action. However, as of yet, we've seen none.

In the 15 months since that report was submitted, there's been very little in the media, in the way of discussion, and certainly, there's been even less action. As Loribeth said, David Johnston's discussion at Queen's Park "is a welcome reminder and endorsement from a high-profile Canadian."

A few months ago, in the Ottawa Citizen, there was an article entitled "High Cost of IVF stalls funding in Ontario." It cited Ontario's Health Minister, Deb Matthews, in that article as the person making that statement. In response, I wrote to Minister Matthews. Yet again, I told my story. I reminded her that without the finances behind us, I would be in the position of never having a child and never being able to carry on my family's name. Never giving my parents a grandchild to love and hold and dote upon. And I urged her to move forward with the recommendations.

I actually got a letter back from Ms. Matthews last week. In it, she thanked me kindly for contacting her. She congratulated me on the birth of Petite. But the majority of her letter focused on the fact that much study and review still needs to be done.

You know something? The studies have been done. Governments at various levels have already put a ton of money into ensuring that studies were done, and done correctly, and that due consideration was given to their recommendations. Those recommendations have now been put forth and let me be clear: they are unanimous.

FUND ASSISTED REPRODUCTION.

MAKE ADOPTION EASIER.

There's always going to be a desire to do 'more studies' and 'more reflection'. That's the nature of the beast with such a complex decision. However, while the recommendations of the Expert Panel languish on some bureaucrat's desk, people like me are desperately searching for ways to fund their family-building methods, or frantically trying to find their way around the adoption-go-round.

It's long past time that our government helped us. It's long past time to change the fact that residents of other provinces get preferential treatment and access to help not afforded to the province that I choose to live in. (Make no mistake, it is a choice that can be revoked.)

This year, Quebec saw the light and now funds up to three cycles of IVF treatments. I hear that the increase in clients at McGill is exponential. I expect to be met with a sea of faces when I go back next week to talk to our doctor about trying to have a second child. In addition to Quebec's decision, Manitoba took action as well. That province stepped up, offering maximum amount for those undergoing treatments.

So do I need to move to another province to get treatment? Do people in one or two provinces merit assistance and none of the rest of us do? Right across the river from where I live is Gatineau. It's in Quebec. Do I need to move less than five kilometres in order to have my next IVF funded? Believe me, Gatineau is very close to my home. I can, literally, see the province of Quebec from my doorstep. I've seriously considered making that move.

In 2009 (on the day Petite was born in fact, August 27, 2009), Premier Dalton McGuinty said that he believes the Ontario government should be in the baby-making business. Understandably, he indicated that there must be consideration for assistance, and that maybe the government would first have to move on low-cost recommendations or phase in changes over time. At that time, NDP Leader, Andrea Horwatch urged the government to implement the Expert Panel's recommendations, reminding us that "Infertility is often an embarrassing and painful issue for thousands of women, while adoption is costly and takes years to go through the process. We need bold action from the McGuinty government to help these women and families across Ontario become parents."

And then, a couple of days ago, the whole issue was brought to the forefront again. A federal Liberal candidate, Mr. David Bertschi, knocked on my door. When he did, Hubby answered. Hubby said, "I have no questions, but I'm sure my wife has something to ask you." I picked up Petite, carried her to the front door, and said to him, "Do you see this little girl?" He nodded and smiled at her (seriously, she's so cute, how could he not?). I stated, "She is the direct result of six years of infertility treatments, more than $30,000 and one IVF cycle that gave us a miracle. While I was pregnant, I was part of the Expert Panel on Infertility and Adoption. The recommendations have been presented to the government. It's time to act. And I really don't think I should have to take out a second mortgage to do it." We chatted for a few moments, and I gave him the address to this blog.

Let's hope Mr. Bertschi sees this blog. Let's hope he sees and maybe gets to meet some of you, my sisters and brothers in infertility, who fight alongside me day after day, year after year, hoping that things will change. We want change for us, yes. That's true. But also for the many that come behind us.

All I can say is I'm glad I'm not waiting around for any government to help me. If I wait for someone in Queen's Park to make a move on this, I'll be well over the age limit by the time they get around to me. And if that's the way that governments assist their constituents, we certainly have a long way to go.

Friday, March 12, 2010

Quebec will fund IF treatments!

Today, there is some great news on the infertility front here in Canada. At least ONE province has stepped up to the plate...

Quebec to fund in vitro fertility treatments (link to the article on the CBC News site)

It's wonderful to see some movement by a provincial government on this issue. I know the Ontario government has begun their own studies and made recommendations to the same effect (I was interviewed by Ontario's Expert Panel for this process). And with some luck, the same funding will soon be available in Ontario. I can only hope.

Makes me wonder if I ought to hold out a bit, if we're going to try for a second child. Who knows, it may be funded after all...

On a personal note, I'm looking for two bloggers.

The first is Mick (previously from wannabedad.blogspot.com and more recently from irishpolishdad at wordpress). Both blogs are MIA and I've no e-mail address for Mick and his wife. I'd love to know how things are going and/or follow along with his story. If you know where to find Mick (or Mick, you're visiting my blog today!) jot me a note with your contact details please! You can find me at jiliana2 (at) gmail (dot) com.

The second is a dear blogger who said she would like a Refund On These Ovaries (refundontheseovaries.blogspot.com). The title of her blog had changed to Over My Ovaries and On With my Life and detailed her and her DH's efforts to pursue adoption in their state. I haven't been as diligent with commenting over there and now I've lost access! If you have her e-mail address, let me know so I can get in touch and request access.

Petite's RSV isn't as severe. She's still not 100% so a planned driving trip to WV and VA next week had to be cancelled. C'est la vie. One of many sacrifices for our daughter in the years to come.